Roller Coaster!!

Hiya it’s only me again back for some more fun and laughter!!

As you know I went to see Merlin yesterday and my thoughts on having to use the highly efficient hospital transport again. Well I have to say apart from a few small problems it was certainly a lot smoother than of late, things like they called at the wrong house first of all, then they parked about ½ mile away, lucky I had the wheelchair. Well off to perfect start I thought. Mmmmm not quite!! We were only picking up 1 more patient on the way in and it was sort of on the way to Heath Towers anyway. Well, when we arrived he wasn’t quite ready so we had to wait a little while. Then, when he was wheeled up into the ambulance they ended up having to un release me so that he could get his rather posh and snazzy wheelchair next to mine. Oh yes I forgot to say at the beginning that they actually turned up at 12pm which gave us a whole hour to get to Heath Towers which was very doable. Well we were off and more or less had enough time to get to my appointment on time for a change, although in saying that Merlin is always late as he has his head buried in various obscure potion and spell books in readiness to see me. Well I was thankful they had strapped me in very securely as the Woman ambulance thought she was in some Rally or something. Now I don’t mind speed at all but she was driving like a maniac through the tight lanes and I swear we must have been up on 2 wheels a few times and the fact was sat in the wheelchair on not securely on one of the seats just made matters worse. The other patient was looking a bit grey around the gills too and his poor wife who had already said that she felt a bit queasy sit backwards seemed to be fighting off the urge to, well you know what. To male things worse too the escort didn’t shut up all the way there and it was complete drivel about this partner and that partner and fights she’d had with people and stuff, quite scary at times and I wouldn’t want to cross her so I just tried to nod every now and then whilst trying to keep a close eye on which direction I was going to be thrown next!! Finally we arrived all nicely refreshed with 5 minutes to spare too and they set up shuffling us around to get off the roller coaster. After getting of she said what department are we taking you to and I hurriedly said no worries I can make it myself no problem. Well after seeing her driving I thought I couldn’t take any more of that!!

So here I am only 5 minutes late as it took me a while to push myself to the Day Unit and surprise, surprise Merlin wasn’t there yet. It gave me time to have a natter with all the staff there and catch up on any gossip etc I guess. With a puff of smoke he appeared as if by magic at 2pm, only an hour late which I quite good for him. I think he is from Jamaica or the Caribbean area and you know the pace of life there I think he still works at Jamaican pace!! Well I went in to see him and Sheri was in there too. After going through the usual stuff, how are you etc etc etc.. I brought up about not being happy with the lack of progress as far as the PUVA and Cyclosporine is doing its job or rather not doing its job. After some discussion what was agreed was that he would bring it up and the Weekly Head Mash on Wednesday, where all the Knights sit around the Round Table and have a Pow Wow along with the nurses and various others such as Biochemists etc and see what suggestions cone out of that. His feeling is that the next form of treatment would be that Cell transfusion/cleaning thing that I mentioned some time ago. It comes with one major stumbling block in that the nearest machine to here is in Birmingham and I would have to go there and back twice a week. Oh nooo more hospital transport hassle I thought but in saying that what I have known of other patients in the past they take you by car and wait around to bring you back when you are finished so wont be that bead I suppose and besides that Judith will be available to take me there soon and will no doubt relish the opportunity to go off shopping whilst she waits ha ha. Well after another nice long natter with Sheri (WHO I AM STILL LOOKING FOR A PET NAME FOR??) and the usual deposit of my precious Red Gold I was off back to concourse to arrange my flight back home. I was frightened that as I got there the couple we had picked up on the way were waiting to go back home too so they would send us back with that maniac. Well as luck would have it he went off in a taxi with a couple of others before me. They put me in a black cab with 2 others who were at least going my way. The problem was that as my wheelchair is quite large it not possible to turn it around into the right place to have the straps fitted so I was sitting sideways and totally reliant on the chairs brakes. Needless to say the first roundabout we got to in the hospital ground I tipped backwards and banged my head. It was only about 6 inches or so but could have been worse. Thankfully the driver saw this and after asking if I was alright proceeded home as if he was driving a hearse taking every corner etc at very low speed, mind you I was shaken up by that first tip that I grabbed hold of anything I could every time we got to a bend or corner.

Boy was I glad to get home after a usual run of the mill trip for me and spent most of the rest of the evening just chilling I suppose.

My chest is still not right be a long way although the new antibiotics they had put me on last Thursday seem to be having some effect and the coughing has cleared up a little although I guess it’s early day’s yet. They have apparently found in the last sample the same old culprits again, Candida and Asprigillis and along with this Merlin recons that all the other things like the Psudomonus is jumping on the band wagon just for a laugh. Well progress is progress after all and I’m grateful for what I can get these days.

Okay off for more bargain hunting online which has replaced my love of all things shopping whilst I am more stuck at home than normal at the moment.

See Ya!!