Ah That’s Where You Are!!

Is it really that long since I last blogged?? It only seems like it was yesterday too. To be honest with you I haven’t even turned the computer on for days now which is highly unusual for me as the thing is usually permanently on. I just haven’t felt like communicating with the outside world at all and so I have locked myself away in my little kingdom apart from the odd visit to Heath Towers for either PUVA or to see the Wizard. Would you believe it I’m up to 40 seconds in the Tardis now? I’ll have a lovely tan in a couple of years at this rate!!

This latest chest infection is proving to be a stubborn bugger and taking it’s time to totally clear up. I’m still chesty at times now after finishing the latest load of happy pills. As you may well have guessed by now my skin is still as bad although in saying that I do have days when it is a lot less itchy than others but not by a huge amount though but I guess it could be seen as an improvement. As far as the Wizard is concerned there is not much to report really. Things are progressing as expected and he is still waiting to hear from the Specialist at Brompton Hospital about the possibility of having a Heart & Lung Transplant at some stage in the future. To be honest the thought of having to go through all that is quite frightening but it’s the end result which would inspire me to get through it. Just the thought of being able to breathe normally again is such a Luxury for me at the moment and completely out of my reach. I am coming up to levels of Cyclosporine (immuno suppressant) where I begin to be sick so I’m not looking forward to that progress but if it works in the long run I guess it has to be done really doesn’t it??

All’s going well on the car front although I had begun to start to worry a bit today. I had sent off all the required paperwork to Motorbility last Tuesday and was told that I would receive confirmation to go ahead and place an order with the dealer for the new car when that arrives. The deal I had on the Chrysler which is only a £500 deposit has to be taken up by Friday of this week because after that they move into the next quarter and they have been told that it will be going up to around £1,500 which is out of the question for me. So when I hadn’t heard anything from them I rang them this morning. She informed me that as I had paid the £50 by cheque as they had asked, it’s their policy to wait for 10 days for the cheque to clear before they authorise the new car which would make it into next week. I explained the situation I was in and could I make a payment over the phone with a debit/credit card as although the cheque was in the system I would still rather loose £50 and get the car instead of loosing the car all together. She put me on hold for a moment and no sooner had she done that she was back on the line with the great news that they will make an exception in this case as the deposit jumps so much they don’t want me to loose the car for the sake of £50 and a few days, and I could go ahead and contact the dealer to arrange delivery of the new car etc.. I did happen to check my bank online whilst I was on the phone to them and the cheque had actually come out of the account yesterday anyway. So straight down to the dealership in Cardiff to finalise all the paperwork etc and I will be picking it up on Friday Lunchtime Yipeeeeeee!!!!!!! Lucky bugger that I am as the exact car in the colour and spec I want is sitting out the Back of the dealership already so they don’t have to wait for it to be shipped from elsewhere, they just have to get it all the usual checks and cleaning etc then it’s all mine. I cant wait now and it’ll get a good christening alright as we are off to Scotland a week Friday for the Family Wedding of the Century so that’s half my yearly mileage allowance used up in one go. I’ve been looking forward to this wedding for almost 2 years now and wouldn’t miss it for the world in fact there has even been plots arranged to come and kidnap me, bed & all from Heath Towers if I am taken in for some reason.

I went to see the delightful Sarah (councillor) this morning too. I haven’t been able to see her for ages either due to me being in hospital or her being on the sick so to be honest there was a whole heap of garbage dumping to be done today. I find these sessions really do help as although family and friends and nurses and doctors all help in their own special way I still after all this time find it quite difficult to be completely open in what I share with people. I know some of you might find that hard to believe bearing mind some of the previous blogs have been very blatant and revealing etc but some things are only said during these sessions which I don’t wish to burden on anyone else. Her expertise is in the field of bereavement counselling but when you think of it a lot of what is going on in my mind are thoughts of loss as I have talked about in the past on here so she has a lot of tools to be able to help me. Besides all that she is a sweetie anyhow and I just love having a natter.

Dare I be so bold as to suggest that the mood is slowly lifting from the darkest recesses of the last few weeks and things might, just might be turning in my favour at last and all is not doom and gloom???

I won’t be sucked into that one. One day at a time Jonny Boy, one day at a time!!!!

See Ya!!